October 25, 2009

Our sweet boy


When Isaac was born I noticed that one side of his tongue was very thick. I tried to ask his doctors in Japan if they knew what caused it, but with the language barrier I didn't get very far. They assured me that he was healthy and normal so there was no need for concern. But as his mom, that wasn't good enough. I wanted answers just for my own peace of mind. Over the last almost 2 years, I have been trying to get this question answered. I have done a lot of research on the internet and I have spoken to a couple of pediatricians here in the states. We even went to Primary Children's hospital in SLC to rule out Beckwith Weidemann syndrome (which was scary because of Shane's strong family history of Wilm's tumor). He didn't have that, so I was still left without answers. When we moved here, Shane and I started to notice that Isaac had what looked like a lump under his chin. It almost looks like he just has a double chin, which is normal for babies, except his is only on one side. And it is the same side of his face and directly under the side of his tongue that is thick. When I took him into his pediatrician here, I told her the whole story and showed her his thick tongue. She looked under the tongue and said he definitly has some type of cyst under the tongue and thought it might be a ranula. She refered me to an ear, nose and throat specialist. When he saw Isaac, he suspected the same thing, a ranula (which is a saliva filled cyst) that just needs to be surgically removed. He wanted Isaac to have a MRI just to be sure. I felt like we were really starting to figure things out, but at the same time, I wondered why this would make his tongue look so thick. My other question was why this cyst seemed to become very large whenever he was sick. When the results from the MRI came back, it showed that it was not a ranula, but something called lymphangioma. It extends clear up into his tongue and from under his ear all the way toward the chin. There is not just one cyst, but hundreds, some very small and some large. This made a lot more sense to me because it is in the lymph system and that is why it gets bigger when he is sick, and it also answered the question of why is tongue is big. So now what to do about it??? Luckily this really isn't a life threatening thing. I am very grateful for that, but it is still something that needs to be taken care of because it keeps growing. We were given two options, the first was to try to have it surgically removed. We were told this could be very tricky because of all the nerves in that area of the face, and also that because there are many cysts that are very small (like the foam on root beer) it would be almost impossible to remove them all. The other option was to go to a doctor in Phoenix who does a technic to sclerose the cysts. This means that they would drain the cysts with a needle and then inject them again with something that would cause scarring of the tissue so that the cyst would colapse and not refill with fluid. Both of these options have their drawbacks and so we dedided to meet with the doctor in Phoenix and see if she thought this would be sucessful. This meeting was about a week ago. After looking at Isaac's MRI, she thought this proceedure could work very well. Now we just need to decide when to have it done. We thank all of our family and friends who have prayed for us to find answers. I feel like we finally do and I am grateful that we aren't dealing with something much more serious.
I wanted to give the update so I hope this wasn't too long. I will post again when we decide when we will have it done.

October 15, 2009

we LOVE visitors

Shane's Aunt Carolee, Uncle Ron, sister Melody with her son Carter, came to visit us this last weekend. We enjoyed having them here so much.


Ron is quite the handy man and completed more projects around the house while they were here than I even know about. I also had a good time taking Carolee and Melody shopping to decorate this empty house. We made some great purchases made some headway too.
Shane keeps bragging that we have now had two visits from his family to our new house and only one from mine (thanks Spencer and Kristol!). My family really needs to step it up a notch. Maybe getting people to come and visit won't be such a tough sell once the weather is cold up north and perfect down here. Start making your reservations now!

October 3, 2009

House Pics

I am finally going to post some pics of the new house. I am not including a picture of the outside for safety purposes. I tried to just walk through the house and take pictures of most of the rooms. We still have a lot of upacking and arranging to do, so I am a little embarrassed of some of the rooms. I took these pictures almost 2 weeks ago, and already a lot has changed, but this will give you an idea...